Sunday, July 11, 2010

Let the Waters Rise

Several times in my life God has used music to encourage me. I love the song Let the Waters Rise by Mike's Chair. The chorus goes like this...

God I trust you.
There's a raging sea right in front of me
wants to pull me in,
bring me to my knees.
Let the waters rise,
if you want them to.
I will follow you.
I will follow you.

Amelia and I had enjoyed singing this song in the car when it came on KLOVE. Little did I know that in January God would start using this song to encourage me. Around Christmas I experienced a loss of sensation in several parts of the right side of my body. My cheek, part of my back, my other "cheek," part of my leg, foot, etc. My sister insisted I got to the doctor- ASAP. So I did.

My Dr. ordered an MRI of my brain. He didn't say, but sister already had. It could be MS, Multiple Sclerosis.

God I trust you.
There's a raging sea right in front of me
wants to pull me in,
bring me to my knees.

I was scared. Ian was scared. The MRI showed up normal! No weird white marks on my brain. Next step was blood work, which came back normal as well. Another follow-up with my doctor. I was still having symptoms so he sent me to a neurologist.

Let me just say for all of you that have to see a specialist: I'm sorry. What a headache. Crazy full schedules, extra money, tons of paperwork. It's difficult.

My sister went with me. After a 30 minute evaluation he said, "I'm very concerned about you." He suspected MS as well. The color red looked different from one eye to the other. My big toe did not respond to pin pricks, etc. But my MRI was normal! It wasn't done properly. I needed another view that wasn't taken the first time. Oh.

Let the waters rise,
if you want them to.
I will follow you.
I will follow you.

This time I didn't hold up so well. I cried a lot. a lot. Then a big mess came with the doctor. Charts not going to the right place, calls not being made. It took a long time to get another MRI. When I finally did get the MRI it took 5 weeks for the doctor to give me the results. 5 weeks.

God I trust you.

Again, no weird white marks on the brain. So it's not MS! Well.... 90% cleared. You need to go to a neurological ophthalmologist. You see, I'm still having symptoms, including vision differences between the right and left eye. MS can cause atrophy of the optical nerve leading to eventual blindness.

There's a raging sea right in front of me
wants to pull me in,
bring me to my knees.

Have you ever considered your life with a disability? I have. It's given me a GREAT appreciation for those who don't have sight. I have no idea how that feels. All I know is how it feels to face the possibility (not the reality but possibility) of losing my eye sight. Selfishly I want to see my daughters graduate, walk down the aisle, see their babies. And I hope I can and will. Only God knows if I will.

Let the waters rise,
if you want them to.
I will follow you.
I will follow you.

Another specialist. Another pile of paperwork. I'm half way through this final hurdle. I'm pretty sure he's going to say I'm fine. I'm pretty sure I'm going to be told there's no explanation for my symptoms. Which, in the past, might have frustrated me, but I'm grateful for this "answer."

I'm grateful that I don't have MS, and burdened for those that do.
I'm grateful for insurance, even though this has all come out of our pocket. If I did get diagnosed with something it would eventually kick in and cover the major expenses.
I'm grateful for Ian's job that pays well enough for me to get the tests I need when I need them.
I'm grateful for the support structure I've had, and would have had if I had been diagnosed with MS.

Most importantly I'm grateful for a God who loves me. A God who encourages me through His people, His Word and His music.

God I trust you.
There's a raging sea right in front of me
wants to pull me in,
bring me to my knees.
Let the waters rise,
if you want them to.
I will follow you.
I will follow you.

6 comments:

Vicki said...

Oh Erin, I had no idea. I'm praying for you now and hope you will provide an update when you get completely through the process. Having received the news that I have a disease almost 10 years ago, I know all the thoughts, feelings, fears, and frustrations that you're experiencing. Hang in there, it does get better (especially if you find you don't have MS).

Janette said...

Keep your chin up, dear. We are praying. Keep us updated. I had no idea you were going through this. We want to help in any way we can.

stephanie said...

thanks for your awesome perspective and allowing God to be honored in your life. you are an encouragement to me.

i'll be praying...

(please disregard email i just sent you... note to self: read blog first)

Joanna said...

of anyone I know Erin, you are the most encouraging no matter what you are faced with. You're totally a model of how to be. I'll be keeping you in my prayers too.

The African Groggs said...

friend, really, i am so glad i got on your blog for reading today...and you wrote this! i have been over here sweating, not b/c of the heat, but b/c every time i think about you i sweat with anxiety :) so thanks for encouraging me b/c it's all about me and how i need to know you are okay :) praying for you like you do for me. love the song....and you.

Lisa said...

Oh man, Erin. I had no idea either. Wow, this is a really big trial that you're in right now. I just want you to know that your faith and your trust in our God is SO amazing and encouraging. We will be praying for you. Love you friend,